Founder, Crimsonbow Sickle Cell Initiative
DAY 2: Patient Advocacy Forum
Oluwatimileyin Edwin who is popularly Known and referred to as Timi Edwin is the founder and CEO of CrimsonBow Sickle Cell Initiative. She is a Pastor and a sickle cell woman with 15 years’ experience in the corporate field that cuts across HR, Finance, Business Development, Procurement, Administration and Consular duties. She has a BSC in Mass Communication from Covenant University, an MBA from Business School Netherlands, a certification in Nonprofit Leadership and Management Program from Lagos Business School and a fellow of African Women Entrepreneurship Cooperation (AWEC) and Leap Africa Social Innovators Program.
She is the Head of projects for the Coalition of Sickle Cell NGOs, the NCD (Non-Communicable Diseases) Alliance Ambassador, and the editor-in-chief of “Our Views, Our Voices” Newsletter for People Living with NCDs and a member of the Regional Advisory Board of the African NCDs Network for People living with NCDs, an of shoot of African regional NCD Alliance. She is also the executive producer and producer of a sickle cell Short film- In the name of love- on YouTube. She won a Hall of Fame Award at the 2018 Nigerian Volunteer Awards, was a nominee of the 2019 and 2021 International Sickle Cell Advocate by Sickle Cell 101.
She won the Resilience Award for AWEC (African Women Entrepreneurship Cooperation) 2019 Fellowship. She was a nominee for 2019 Her Woman of the Year award in community service but won the same award in 2021. She also won the Leading Ladies Africa 100 Most Inspiring Ladies in Nigeria award for 2022. She recently won the 2023 Forty under 40 Africa Award for the work she does with sickle cell.
She has tirelessly worked to ensure that thousands of sickle cell individuals are medically, emotionally and financially impacted. She is the force behind all Crimson Bow Sickle Cell Initiative’s projects which has ensured that 24,000 people are impacted across Nigeria. With her help, her organization has won two international grants that are useful in advancing the sickle cell cause. She also tirelessly creates awareness for the sickle cell condition while ensuring that many have received free genotype and blood group tests across Lagos, Oyo, Ogun and Minna. She is an advocate for sickle cell policies and instrumental to the Sickle Cell Bill currently being passed at the Nigerian Senate.
She recently facilitated through her NGO the training of medical practitioners in Primary Health Care Centers across Lagos State received training on sickle cell treatment to ensure that more disadvantaged sickle cell patients in the grass root of Lagos access good care at their Primary Health Care Centers.
She also recently organized a round-table discussion with key government health representatives like the Minister of Health, Nigeria and Commissioner of Health, Lagos State, government health parastatals leads, stakeholders and the First lady of Lagos, to discuss about Sickle Cell policies and processes within Lagos State and Nigeria.
She has put over 500 beneficiaries on free Ilera Eko HMO plans in Lagos state courtesy the Lagos State Governor, to ensure they have access to free and quality health care. She runs a free monthly Sickle Cell Clinic that has over 400 under-privileged patients. She has given several grants to sickle cell owned businesses.
She is highly passionate about youths and pastors them in the church she attends. – Mercy Seat Church.